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FRES Student Advocates for Tourette Syndrome Funding and Support

French Road Elementary School fifth grader Eleanor Babcock went to Capitol Hill in March for Tourette National Advocacy Day. Babcock met with legislators to advocate for more support and vital funding for Tourette Syndrome.

Eleanor was diagnosed with Tourette when they were 7 years old. Tourette Syndrome is a neurodevelopment disorder that is characterized by sudden, involuntary movements and sounds called tics. In addition to tics, many people with Tourette have concurring conditions like anxiety, ADHD, OCD and 20% have autism. Eleanor was diagnosed with Autism last summer and is learning to embrace thinking differently. Eleanor feels strongly about advocating for the neurodiverse community. “I want to raise awareness of what it’s like to live with Tourette; it’s more than tics! Many kids with Tourette and other neurological differences have experienced bullying and are afraid to speak up. It’s something I’ve struggled with throughout school, and I want to use my voice to change that."

Eleanor completed the CDC-funded Junior Youth Ambassador program provided by the Tourette Association of America and gained the skills and confidence to present to the offices of Senator Gillibrand, Senator Schumer, and Congressman Morelle.

FRES student at Congressman Morelle's office

speaking at the capital